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Holding On to Hope
This is a website that my two best friends and I have started to let people learn more about rare diseases. We hope to help at least one person by mentioning all sorts of charities for each disease. We love to help others and we hope this will be a great success!
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EB Through the Eyes of a Patient
I am a young adult with RDEB and my site has lots of information on the management of EB including medical care, nutrition, basic info and much much more!
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Cyndi's Peace
This site is a memorial to Cynthia Dawn, who died of complications from Recessive Dystrophic Epidermolysis Bullosa.
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Capable Corners
Capable Corners is a site for people with ALL kinds of disabilities and diseases. There are links on EB in our info booth and we proudly wear the EB ribbon of awareness as a Partner in Hope.
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Butterfly Children Yahoo Group
A place to raise awareness of EB and to meet friends, chat and have a cuppa :)
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